Resources

On our website, we've compiled many resources (listed below) that will hopefully provide help and information for you and those you love. We also encourage you to visit the links we provided below. There are many organizations and websites that can give you additional support.

Books that may help...

  • When Pregnancy Fails: Families Coping with Miscarriage, Stillbirth, and Infant Death, Susan O. Borg, Judith Lasker
  • Surviving Pregnancy Loss, Rochelle Friedman, Bonnie Gradstein
  • Coping with Miscarriage, Othniel J. Seiden, M J. Timmons
  • Empty Arms: Hope and Support for Those Who Have Suffered a Miscarriage, Stillbirth, or Tubal Pregnancy, Pam Vredevlt
  • Gone Too Soon: The Life and Loss of Infants and Unborn Children, Sherri D. Wittwer (L.D.S. perspective)

Books for children

  • Mommy, Please Don't Cry, Linda DeYmaz, Laurie Snow Hein
  • We Were Gonna Have a Baby, but We Had an Angel Instead, Pat Schwiebert, Taylor Bills

Links

If you have an organization or service you'd like us to refer, particularly in the Salt Lake area, please contact us for consideration.

Picture Resources

Now I Lay Me Down To Sleep (www.nowilaymedowntosleep.org) Now I Lay Me Down To Sleep aims to bring parents together with professional photographers that are volunteering their time and services to helping parents create these heirloom memories of their time together as a family.

The American Child Photographers Charity Guild (www.acpcg.com)

The AngelPics Project (babyangelpics.com) The AngelPics Project was created to donate photo retouching resources to the parents and families of a stillborn babies. Through this free service, skilled digital artists work with a digital copy of your original, eliminating medical equipment, removing unsightly marks and even replacing the background if desired.

Heather Spears Drawings (www.heatherspears.com/drawings/bereavement.htm) Heather Spears is a wonderful pencil artist who can draw a picture of your lost loved one.

Infant Death

American SIDS Institute (www.sids.org)The American SIDS Institute, a national nonprofit health care organization, is dedicated to the prevention of sudden infant death and the promotion of infant health through an aggressive, comprehensive nationwide program.

First Candle (www.firstcandle.org) First Candle is a national nonprofit health organization uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival.

The Great Battle Against SIDS (battlesids.org) The Great Battle Against SIDS is a child loss center that provides a variety of services to families who have lost a child 7 years or younger. Families are welcomed to contact the center for assistance.

Helping After Neonatal Death (www.handonline.org) H.A.N.D. (Helping After Neonatal Death) was founded to help parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth. They hope to reach out beyond their local California area to provide information and support to bereaved parents and the people who care for them.

The March of Dimes (www.marchofdimes.com) The March of Dimes had a wealth of information. Their Medical References section covers a wide range of perinatal and genetic topics. As well as an extensive Pregnancy and Newborn Loss area.

Mommies Enduring Neonatal Death (www.mend.org) M.E.N.D. (Mommies Enduring Neonatal Death) is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.

The NationalSuddenInfantDeathResourceCenter (www.sidscenter.org) The National Sudden Infant Death Resource Center (NSIDRC) serves as a central source of information on sudden infant death and on promoting healthy outcomes for infants from the prenatal period through the first year of life and beyond.

SIDS Network (sids-network.org) The Sudden Infant Death Syndrome Network, Inc. dedicated to eliminating Sudden Infant Death Syndrome through the support of SIDS research projects, providing support for those who have been touched by the tragedy of Sudden Infant Death Syndrome, and raising public awareness of Sudden Infant Death Syndrome through education.   Utah SIDS Alliance phone number

Miscarriage

Facts About Miscarriage (www.pregnancyloss.info) At this site you will find information and a place to come in your dark and frightened hours. Topics ranging from causes of miscarriage, to prevention, to when to try again for a new pregnancy.

Miscarriage Help (miscarriagehelp.com) A site for those who have suffered a miscarriage. Hosted by Ellen DuBois, author of I Never Held You.

Miscarriage Memories (www.miscarriagememories.com) Perfect baby heart charm for miscarriage.

Miscarriage Support (miscarriage.homestead.com)Women who have suffered a miscarriage and need support or simply a place to talk about their feelings after miscarriage during their time of grief and crisis after the loss of their baby.

Our Miscarriage (www.ourmiscarriage.com) Our Miscarriage is a website that dedicates itself to helping all people who are coping with miscarriage, have questions or need a place of comfort.

RecurrentMiscarriageInformationCenter (www.recurrentmiscarriages.com) is a large database of helpful links and information

Stillbirth

The International Stillbirth Alliance (www.stillbirthalliance.org) The International Stillbirth Alliance is a non-profit coalition of organizations founded by stillbirth parents. It is dedicated to understanding the causes and prevention of stillbirth

Missing Angel Foundation (www.missingangel.org) Missing Angel Foundation acts as a memorial site where parents can post their stillborn baby's name, delivery date and picture. If parents have a memorial website for their baby, they will include a link to that site.

The MISSing Angels Bill (www.missingangelsbill.org) The MISSing Angels Bill and similar legislation has been enacted in 13 states. Under this bill, when a 'Certificate of Fetal Death' is required, and the child was stillborn, parents will be offered the opportunity to receive a 'Certificate of Birth, Resulting is Stillbirth'.

Missing GRACE Foundation (www.missinggrace.org) The mission of Missing GRACE Foundation is to provide resources and support for families that have experienced: pregnancy loss, infant loss, infertility or adoption and to advocate for comprehensive, patient focused prenatal care for all women.

The National Stillbirth Society (www.stillnomore.org) The National Stillbirth Society is an activist organization comprised of parents who have lost one of more babies to stillbirth.

Termination Support

A Heartbreaking Choice (www.aheartbreakingchoice.com) A Heartbreaking Choice is for parents who have made the decision to end a much-wanted pregnancy due to severe or lethal birth defects.

Perinatal Hospice (www.perinatalhospice.org) Perinatal Hospice offers support and information for those who have received a prenatal diagnosis that indicates your baby likely will die before or after birth.

Pregnancy & Parenting after a loss

Pregnancy/parenting After Infertility and/or Loss Support (www.storknet.com/cubbies/pailsofhope) StorkNet recognizes the tender feelings associated with pregnancy and parenting after a loss and/or infertility since it's a roller coaster ride like no other. Their PAILS of Hope cubby and forum are designed to provide the special support parents in this situation need.

Subsequent Pregnancy After a Loss Support (www.spals.com) SPALS is a warm and compassionate community of people who have experienced the loss of a child due to miscarriage, selective termination, stillbirth, neonatal death, sudden infant death, or accidental death.

Other Nonprofit Organizations

Angels for Hope (www.angelsforhope.org)  Angels for Hope is a nonprofit organization that offers free crocheted angels for anyone in need of hope.

 A Small Victory (www.asmallvictory.org) A Small Victory is a 501(c)(3) non-profit organization providing hospitals and parents with CARE (Compassionately Alleviating Regret Everyday) Packages which gently guide newly bereaved parents in creating memories with their children that will last a lifetime.

Bears for Bereaved Mommies (www.bearsforbereavedmommies.org) Bears for Bereaved Mommies are a Canadian non-profit offering support to those who experience pregnancy and infant loss. Their program, Bear Care Cub Distribution Program, provides bears to facilities that offer bereavement programs and services for those who experience pregnancy and infant loss.

Cailin's Memories (www.cailinsmemories.org) Cailin’s Memories is a not for profit, 501(c) 3 tax-exempt corporation founded for the purpose of helping families who have lost their babies from miscarriage, prematurely, stillbirth, birth defects, or SIDS. They also will attempt to help and support families experiencing infertility. Their organization supplies hospitals education and resources to care for these families through their memory box/packet program.

Heavenly Angels (www.heavenly-angels.org) Heavenly Angels Is A Non-Profit Organization. Dedicated to Helping Grieving Parents. They offer a place to come to share with others who understand your feelings and understand first hand how you feel. Heavenly Angels Offers Personalized Crib Size Memorial Quilts that you're able to purchase in memory of your Angel(s).

Obituaries Help (www.obituarieshelp.org) Obituaries Help is an online resource to help plan funeral/memorial services, obituary services, and other ideas and suggestion for sympathy and bereavement. They also have an extensive genealogy section for those starting their family tree.

Bereavement Gift Stores

The American Child Photographers Charity Guild is a non-profit, volunteer based organization of child photographers from all over the country who have come together to provide families of desperately ill children complimentary portrait sessions.

A Place to remember (www.aplacetoremember.com) A Place to Remember has uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby.

The Comfort Company (www.thecomfortcompany.net) The Comfort Company presents a collection of bereavement and sympathy gifts.

Glass Etching Fever (www.glassetchingfever.com) Your Baby's footprints can be etched into a curved glass picture frame or glass Christmas ornament. Add your baby's name, birth date, and maybe a bible verse.

Heavenly Hugs Bears (www.sidsfamilies.com/index.php?sec=heavenlyhugs) Roxane from Heavenly Hugs Bears makes custom teddy bears in memory of your child using blankets or clothes that once belonged to your loved one.

Just a Cloud Away (www.justacloudaway.com) Just a Cloud Away, Inc. provides Remembrance Kits, Memory Garden Tutorials, Healing Crafts and Sympathy Gifts/Ideas for bereaved families of pregnancy and infant loss.

Little Angels Online Store (www.littleangelsonlinestore.com) Visit Little Angels Online Memory Store where you will find products appropriate for pregnancy and infant loss and SIDS awareness products.

My Forever Child (www.myforeverchild.com) Remembrance Jewelry, Memorial Keepsakes, Sympathy and Decorative Gifts to comfort those touched by the loss of a Child. Personalized, Engraved & Handcrafted Miscarriage-Pregnancy Loss Bracelets, Baby-Infant Footprints Charms, and Custom Necklace Pendants with your child’s Footprint, Handprint image or photograph.

Pregnancy Loss Ribbons (www.pregnancylossribbons.com) Pregnancy Loss Ribbons sells pregnancy and infant loss items such as window clings, stickers, t-shirts and much more.

Other Support & Advocacy

Alliance of Grandparents, a Support in Tragedy (www.agast.org) Alliance of Grandparents, and a Support in Tragedy is an all-volunteer organization dedication to helping grandparents through the trauma, stress and grief after the loss of a grandchild.

Anencephaly Info (www.anencephalie-info.org) Anencephaly is a congenital birth defect that occurs in approximately one in one thousand pregnancies. It is a neural tube defect, just as is spina bifida. Life expectancy for a baby with anencephaly after birth is just a few hours, sometimes a few days at most.

CLIMB (www.climb-support.org) CLIMB, the Center for Loss in Multiple Birth, Inc. mission is to provide parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood.

HELLP Syndrome Society (www.hellpsyndrome.org) HELLP Syndrome Society's mission is to become the premier partner to the world's medical community for the study and eventual cure of HELLP Syndrome, while at the same time, providing families who are affected by this condition with comfort, knowledge and a pathway to recovery from this extremely traumatic condition.

The Preeclampsia Foundation (www.preeclampsia.org) The Preeclampsia Foundation's mission is to reduce maternal and infant illness and death due to preeclampsia by supporting innovative research, raising public awareness, and helping women access safe reproductive technology, support and care.

Spinal Muscular Atrophy Foundation (www.smafoundation.org) The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.

Zellweger Baby Support Network (www.zbsn.org) The mission of the Zellweger Baby Support Network is to promote, advance, and improve awareness of Zellweger syndrome and other peroxisomal disorders, to assist, support, and aid, financially or otherwise, individuals and families affected by Zellweger syndrome.

Bereavement Support

Angel Babies Forever Loved (www.angels4ever.com) Angel Babies Forever Loved, Inc., is a non-profit established to support grieving parents of infants’ -from miscarriage, stillbirth, neonatal loss, or SIDS.

Angel Whispers (www.members.shaw.ca/angelwhispers) Angel Whispers is a service for parents who have lost a baby shortly after birth, or during pregnancy, through miscarriage, molar or ectopic pregnancy, or stillbirth who encourage that a healthy way to cope with such a tragedy is to obtain information, seek others who offer empathy, and to allow oneself to experience grief.

Angel Wing Parents Organization (www.angelwingparents.org) Angel Wing Parents Organization is a group of parents doing charitable acts in memory of their children. Their children brought so much light while they were here, they intend on keeping that light shining bright.

A Place to Remember (www.aplacetoremember.com) A Place to Remember has uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby.

A Quiet Refuge (www.quietrefuge.com) Bringing healing to hurting families by hearing their hearts, acknowledging their pain and loss and providing them a way to honor and remember the life of their little one.

Babycenter Grief and Loss Bulletin Boards (www.babycenter.com/306_pregnancy-infant-loss_1517042.bc) Baby Center Bulletin Boards on various loss topics. You'll find support and help from others who have been through it.

Babysteps (www.babysteps.com) BabySteps is named after the baby steps that form the long and difficult road to recovery from the loss of a child. In their online memorial area you can commemorate your loved ones and use the sharing rooms to share your personal stories and experiences with others.

The Bereavement Journey (www.thebereavementjourney.com) The Bereavement Journey is a place where anyone who has lost a loved one can find support.

Bereavement Poems & Articles (www.bereavement-poems-articles.com) Bereavement Poems & Articles was created with the understanding that everybody grieves differently.

Born Angels (www.bornangels.com) Born Angels provides links to many wonderful sites, pregnancy loss support, infertility support, neonatal loss support, and adoption resources. Born Angels also has a message board where you can share your feelings and support with others.

The Compassionate Friends (www.compassionatefriends.org) The Compassionate Friends is a national non-profit, self-help support organization that offers friendship, understanding, and hope to bereaved parents, grandparents and siblings. Support through all ages of child loss - bay to adult.

www.FathersGrievingInfantLoss.blogspot.com - Blog for men who are grieving pregnancy loss or the loss of infant

God's Precious Gifts Foundation (www.godspreciousgifts.org) GPG Foundation's purpose is to raise awareness of a parent's grief process after the loss of a child.

Grief Haven (www.griefhaven.org) The Erika Whitmore Godwin Foundation provides grieving parents, family members, friends and professionals information regarding the various types of support currently available, creates and offers new support tools, and endeavors to make these resources as readily accessible as possible.

Healing Hearts for Bereaved Parents (www.healingheart.net) Healing Hearts for Bereaved Parents is a self-help non-profit organization of bereaved parents dedicated to supporting and serving other bereaved parents and their families whose children have died no matter what the age, cause or circumstance of the death(s) by providing understanding, friendship and most of all hope.

Little Footprints (www.littlefootprints.org) Little Footprints is dedicated to providing continuous support, information, and friendship to parents who have experienced a loss through miscarriage, still birth, or neonatal death. The

M.I.S.S. Foundation (www.missfoundation.org) The M.I.S.S. Foundation is a non-profit international organization that provides immediate and ongoing support to grieving families, empowerment through community volunteerism opportunities, public policy and legislative education, and programs to reduce infant and toddler death through research and education.

Missing GRACE Foundation (www.missinggrace.org) The mission of Missing GRACE Foundation is to provide resources and support for families that have experienced: pregnancy loss, infant loss, infertility or adoption and to advocate for comprehensive, patient focused prenatal care for all women.

The MOM Project (www.momproject.org) The Memories of Mariam Project was founded in October 2003, and is aimed towards families affected by pregnancy and infant loss. They offer a variety of information, services, and memorial gifts.

My Forever Angels (myforeverangels.com) Pregnancy and Infant Loss, Preeclampsia, Pertussis and RSV Awareness along with comfort items, printable resources and support.

October 15th: Pregnancy and Infant Loss Remembrance Day (www.october15th.com) October 15th is Pregnancy and Infant Loss Remembrance Day. This site provides support, education and awareness for those who are suffering or may know someone who has suffered a miscarriage, an ectopic pregnancy, a stillbirth, or the loss of an infant.

One Bright Star (www.onebrightstar.org) One Bright Star’s mission is to be a resource for families who have lost a child to death and has created a unique star symbol to recognize and support them. The vision of the founders is that people will recognize the star symbol and reach out to those who have suffered such a loss.

The Pregnancy Loss and Infant Death Alliance (www.plida.org) The purpose of the Pregnancy Loss and Infant Death Alliance is to provide a formal network and a unified national presence to increase awareness and education on the emotional experiences and needs of bereaved families. PLIDA’s goal is to become a central place for parents, their concerned relatives and friends, and interested professionals, media, and policy makers to find information on the emotional aspects of pregnancy loss and infant death.

The Secret Club Project (www.secretclubproject.org) The Secret Club Project: understanding pregnancy loss through the arts is an award-winning international project featuring over 45 artists exploring infertility, miscarriage and stillbirth.

Virtual Memorials (www.virtual-memorials.com) Virtual Memorials offers an online memorial for anyone who has lost someone special. It helps you create the memorial and add beautiful pictures and music.

Wintergreen Press (www.wintergreenpress.com) The Web Site of Sherokee Ilse, bereaved parent, international speaker and author of Empty Arms: Coping with Miscarriage,Stillbirth, and Infant Death and many other books, including Miscarriage: A Shattered Dream. Site includes action items to aid bereaved families and caregivers, news updates and catalog of author's books and booklets.